What Is NUgene?
The NUgene Project is a genomic biobank sponsored by the Center for Genetic Medicine at Northwestern University in partnership with Northwestern Medicine. NUgene collects and stores DNA samples and associated health information from patients at Northwestern Medicine-affiliated hospitals and clinics to be used by researchers to examine the role genes play in the development and treatment of common diseases. The health information collected is both self-reported and periodically obtained from the participant's electronic medical record at Northwestern. The NUgene Project is IRB (Institutional Review Board) approved and compliant with HIPAA (Health Insurance Portability and Accountability Act). NUgene is committed to protecting the privacy of individual participants and the confidentiality of their data.
Untangling Ethical Issues in Genetic Research
Data advances present fresh clinical opportunities - and challenges.
Naper, Joan. "Untangling Ethical Issues in Genetic Research." Centerpiece Apr. 2015: 8-9.
Who We Are
Vice Dean Scientific Affairs and Graduate Education
Professor of Medical Genetics